WHAT IS HAE?
Hereditary Angioedema (HAE) is a very rare and potentially life-threatening genetic condition that occurs in about 1 in 10,000 to 1 in 50,000 people.HAE symptoms include edema (swelling) in various parts of the body, including: hands, feet, face and airway (throat).
WHO IS THE HAEA?
The US HAEA is a non-profit patient advocacy organization serving Hereditary Angioedema patients. Our Association was founded and staffed by HAE patients and caregivers. We provide the HAE community with a personalized support network and a wide range of services to help them lead a normal life.
WHAT ARE THE HAE IN-MOTION® 5K EVENTS?
The HAE IN-MOTION® 5K events serve as the largest HAEA fundraising campaign. All fundraising proceeds from the HAE IN-MOTION 5K® events will support three of our main programs:
HAEA Scholarship Program - provides financial support for HAE patients who are entering or attending college and seeking to improve their lives through academic achievement
HAEA Compassion Fund - offers financial assistance for patients in need who must travel to see an HAE medical specialist
HAE Research - supports expert researchers in their efforts to solve the remaining scientific mysteries of HAE through the US HAEA Angioedema Center at UCSD
In 2018, we will celebrate our third year of holding the HAE IN-MOTION 5K® events. Each event promises to be a fantastic opportunity for family, friends, students, co-workers and colleagues to come together to spread awareness about HAE while supporting a worthy cause! We need your support to make these events a success, and to help raise awareness and much needed funds to allow the HAEA to continue with advocacy, education and research efforts. Your support is greatly appreciated!